Julian was born three
months prematurely. He weighed 1kg (2.2 lbs.) He spent one month in intensive care with one-to-one attention. Poked, prodded, injected, and pumped full of medication, oxygen, transfusions, and painkillers. Over the next months, he slowly improved and graduated to successively less intensive wards.
Julian has Cerebral Palsy.
Since his diagnosis at the age of one, nine years ago, Julian has had physiotherapy sessions every single day, three times a day. In the past nine years, Julian has missed only 6 days of physio.
He works hard. He often suffers. Yet he never stops fighting this vicious condition.
He is my only inspiration.
These are weight-bearing shoes that analyse and verify that the correct weight distribution exists between both feet for proper standing posture. They communicate with each other via bluetooth and transmit all data to a smartphone Android app. The J-Shoes app can also be used to adjust the shoe settings on the fly. Read more...
Because the laser gun was inappropriate for Julian's abilities the same standing platform that analyses Julian's weight distribution between both feet was used. But instead of a laser gun...the platform communicates with a marble run. When standing posture is good...marbles roll. When standing posture is bad, the marbles disappear down shoots! Read more...
A standing platform that analyses Julian's weight distribution between both feet. If he stands correctly the platform wirelessly activates a laser gun which can be shot at the target. If his balance is incorrect, the laser gun is wirelessly deactivated. The gun also deactivates if it is turned from the target. The target has 15 sensors which randomly turn on or off as well as a digital score tally. Read more...
A device attached to Julian's splint that analyses the angle of his calf. If the angle of his calf is not perpendicular to the ground for more than an accepted amount of time, the device vibrates to remind him to stand flat.
A device to help Julian improve his fine motor finger coordination. A series a five pressure sensor pads, each attached to their respective strip of programmable LED lights. The more pressure that is applied...the more lights light up!
Taking a passive approach to the limitations CP presents an individual will inevitably result in aggravated secondary complications in the long run.
Challenging the individual's limitations from CP as early as possible allows for possible improvement from the condition due to neuroplasticity. Neuroplasticity is the brain's ability to 'rewire' itself, especially during the developing years of the child.
Cerebral Palsy is a non-progressive condition. Non-progressive means that it does not get worse over time. In my opinion, taking the definition of non-progressive at face value is a dangerous thing. Just because CP is non-progressive does not mean that it should not be dealt with aggressively from the start.
There are two main reasons for taking an active stance against Cerebral Palsy: